Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Thursday, 2 December 2010
Hand Splint!!
Harry has now had fitted a hand splint for his left hand to keep it in a neutral position as his hands curve due to his arthritis & stiff joints. He will wear it for 1-2 hours a day after school. He will have another fitted for his right hand in the New Year. Im sad about it as its really ugly looking and its yet another reminder of his disorder. On the positive side I know it will help support Harry's hands and ease the pain & discomfort he has. Love you Harry xxx
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