Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Thursday, 19 January 2012

Congratulations Harry...

I have just listened to our answer machine and on Saturday 14th January Harry missed a call from Sir Patrick Stewart. Sir Patrick has left Harry an amazing message congratulating him on being chosen as an Olympic Torch Bearer.. Thank you Sir Patrick youve made Harry's day :))

Atypical Progeria Syndrome Harry's story

Harry

Thursday, 19 January 2012

Congratulations Harry...

Harry with his Medal for Meritorous Conduct

Harry - Dec 2009 aged 10 years & 10 months