Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Tuesday, 25 September 2012
The difference!
A diagram to help explain the differences between Classical Progeria and Non Classical. Harry has Non Classical Progeria.
Sunday, 23 September 2012
Progeria Reunion, Italy 2012
Harry and I have just had an amazing few days in beautiful Italy for this years Progeria Reunion. for Harry to be around children like him is so inspiring.
The love these kids have for each other is something only they understand. We never say goodbye only see you soon. We are counting down the days till we can all be together again.
The love these kids have for each other is something only they understand. We never say goodbye only see you soon. We are counting down the days till we can all be together again.
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