Harry's had a quiet few months since the summer, however we did spend a wonderful few hours in September with the children and their families from the Amy & Friends charity. These families live with Cockayne Syndrome (CS) which is also a premature aging disorder. Please see the link for further information.
The few hours we spent with these families was full of love & Harry and I found it especially touching when balloons were released to remember the 'butterflies' that now fly freely in heaven.
We would very much like to thank Jayne, Mark & Amy Garton Hughes for inviting us to share your wonderful retreat.
