Hats for Progeria

Please see the link - Hats for Progeria

Medical Update!

Harry has been prescribed daily, 75mg of Aspirin by his cardiologist as a precautionary measure which helps to reduce possible problems with his heart associated with Progeria. He has also been diagnosed with an eye condition called Blepharitis (see the link for more details) which is a condition we will manage daily from now on,ironically it usually presents in people over the age of 50! There is no cure just something else he will learn to deal with, with a smile like he does everyday!

5 months & counting!

Its now only 5 months until the next Progeria Reunion being held in August
Hayley Okines and her parents are working hard to raise the funds needed to host the reunion. Thank you to each and every person who has donated so far,

Harry's Dad John, his Aunty Julia & Cousin Lloyd are all in training for the Rat Rat Obstacle course, which involves grueling obstacle over a 20 mile course. Generous people have kindly been donating via the Just Giving page or by Texting DIRT55 followed by £5, £10 etc to 70070

We know of people holding all sorts of different fundraisers to help support us, from collecting money in a bottle to hosting a wonderful charity ball.

If you would like to help please feel free to email me on sharroncrowther@hotmail.com and I can email sponsor forms etc for our PROGERIA UK Charity No 1115846 which will in turn help fund the reunion for all the children in the UK & Europe to spend time together.

Loves & Thank you.