Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Friday, 25 April 2014
Hayley, Harry & Ashanti
We all travelled to London for a photo shoot for The Sun Newspaper, who did a feature on the Harry, Hayley & Ashanti. Please see the link to read their stories and check out their videos.
My boy & Me
A huge thank you to Stewart Williams (Photographer) for the fantastic photos.
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