Harry is currently learning to drive, to obtain his drivers license and gain some independence. His friend Michiel from Belgium has recently passed his test, so many congratulations from us all Michiel.
Harry is learning in a car with automatic gears, this is due to ease of driving because of limited movement in some of Harry's joints. This month he will be sitting his theory test and once he has passed this we can concentrate on getting him ready to pass the practical test, then it's out onto the open road and the driving adventures that follow.
Not much more to add other than it has been a quiet year for Harry, he's finished his exams in his first year at sixth form and we will know in August if he has passed them.
His dog Zeus is now 14 months old and bringing so much joy into all our lives, he and Harry really are the best of buddies.
Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Sunday, 10 July 2016
Tuesday, 8 March 2016
Transition from children's services to adult services!
First part of Harry's transition into adult services commenced today. We met his new consultant rheumatologist and consultant paediatrician. Lots of X rays done to check on the progression of his degenerative arthritis. Referral made back to see a physiotherapist, adult field of course
smile emoticon
Feeling confident that the transition will go smoothly with the other healthcare professionals too.
smile emoticon
Feeling confident that the transition will go smoothly with the other healthcare professionals too.
Tuesday, 2 February 2016
Happy Birthday Harry!
Today Harry has reached another milestone and celebrated his 17th birthday.
Happy Birthday little man xxx
Happy Birthday little man xxx
Thank you
Subscribe to:
Posts (Atom)