Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Wednesday, 28 June 2017
Goodnight sweet Gamze
On the 27th June 2017 aged just 17 years and 4 months our dear friend Gamze fell asleep and grew her angels wings. Gamze had the most beautiful blue eyes and a smile so bright it would light up a room. It has been our pleasure to be your friend sweet Gamze. Sleep well xxx
Monday, 26 June 2017
Family is everything. Progeria Reunion Promo video
https://www.facebook.com/permalink.php?story_fbid=492606944404993&id=100009670753044
Please support if you can. Let's make this years reunion hosted by Miss Skoom in Oslo, Norway in August a reality.
Thank you xxx
Meet just some of the children who benefit from the reunions and magical, precious time spent together.
Please support if you can. Let's make this years reunion hosted by Miss Skoom in Oslo, Norway in August a reality.
Thank you xxx
Meet just some of the children who benefit from the reunions and magical, precious time spent together.
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