Harry turned 18 on the 2nd Feb and to celebrate we had a family meal and also invited our friends over from Belgium. Michiel and his sister Amber have HGPS along with Mats. So it was great for the four of them to spend a weekend together.
Harry
Monday, 20 February 2017
News, news & more news!
Been a busy few months. Harry is now working as an Apprentice for SimplyBiz. The added bonus is that the office is in the same building as his favourite football team. Huddersfield Town. Harry has also passed his driving test in January
Huge thank you to Harry's driver instructor Stuart Wilkinson for supporting Harry in passing his test.
Harry turned 18 on the 2nd Feb and to celebrate we had a family meal and also invited our friends over from Belgium. Michiel and his sister Amber have HGPS along with Mats. So it was great for the four of them to spend a weekend together.
Harry turned 18 on the 2nd Feb and to celebrate we had a family meal and also invited our friends over from Belgium. Michiel and his sister Amber have HGPS along with Mats. So it was great for the four of them to spend a weekend together.
Sunday, 10 July 2016
Learning to Drive! and other stuff
Harry is currently learning to drive, to obtain his drivers license and gain some independence. His friend Michiel from Belgium has recently passed his test, so many congratulations from us all Michiel.
Harry is learning in a car with automatic gears, this is due to ease of driving because of limited movement in some of Harry's joints. This month he will be sitting his theory test and once he has passed this we can concentrate on getting him ready to pass the practical test, then it's out onto the open road and the driving adventures that follow.
Not much more to add other than it has been a quiet year for Harry, he's finished his exams in his first year at sixth form and we will know in August if he has passed them.
His dog Zeus is now 14 months old and bringing so much joy into all our lives, he and Harry really are the best of buddies.
Harry is learning in a car with automatic gears, this is due to ease of driving because of limited movement in some of Harry's joints. This month he will be sitting his theory test and once he has passed this we can concentrate on getting him ready to pass the practical test, then it's out onto the open road and the driving adventures that follow.
Not much more to add other than it has been a quiet year for Harry, he's finished his exams in his first year at sixth form and we will know in August if he has passed them.
His dog Zeus is now 14 months old and bringing so much joy into all our lives, he and Harry really are the best of buddies.
Tuesday, 8 March 2016
Transition from children's services to adult services!
First part of Harry's transition into adult services commenced today. We met his new consultant rheumatologist and consultant paediatrician. Lots of X rays done to check on the progression of his degenerative arthritis. Referral made back to see a physiotherapist, adult field of course
smile emoticon
Feeling confident that the transition will go smoothly with the other healthcare professionals too.
smile emoticon
Feeling confident that the transition will go smoothly with the other healthcare professionals too.
Tuesday, 2 February 2016
Happy Birthday Harry!
Today Harry has reached another milestone and celebrated his 17th birthday.
Happy Birthday little man xxx
Happy Birthday little man xxx
Thank you
A Huge thank you to Martine & the team at Borg Warner turbosystems, Bradford, who have raised £1750.00 for Progeria UK. Thank you also to Sue Ibberson for nominating Harry
Monday, 3 August 2015
Harry & Zeus
On the 4th July, we welcomed Zeus, a border terrier puppy for Harry. Zeus has settled well and is an honorary member of Team Crowther.
They have a great friendship as you can see from the photo. They love to snooze together :)
They have a great friendship as you can see from the photo. They love to snooze together :)
Monday, 6 April 2015
Sleep well Hayley
On Thursday 2nd April at 9.39pm with her Mum & Dad holding her, our beautiful friend Hayley fell asleep. She was 17 years & 4 months old.
She fought so bravely but lost her battle to pneumonia. We will miss you so very much Hayley and you will always be in our hearts
This photo is the first photo H&H had taken together in London, May 2010
This is one of the last photos taken in Denmark, August 2014
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The very last photo ever taken of H&H was in Turkey, September 2014 and this photo sums up their friendship perfectly.
Memories to last a lifetime
xxx
She fought so bravely but lost her battle to pneumonia. We will miss you so very much Hayley and you will always be in our hearts
This photo is the first photo H&H had taken together in London, May 2010
This is one of the last photos taken in Denmark, August 2014
.jpg)
The very last photo ever taken of H&H was in Turkey, September 2014 and this photo sums up their friendship perfectly.
Memories to last a lifetime
xxx
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