Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Sunday, 17 October 2010
Special Needs!!
Harry has been put on the Special Needs register at high school, I guess that's just another reminder that he's different from his peers and requires some some support in certain things....Castle Hall have been so fantastic with him, working along side his Occupational Therapist & Physiotherapist. Harry's needs are paramount & by working together Harry's needs are being met.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment