Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Friday, 20 May 2011

Harry and the Olympic Torch

A very warm thank you to Cllr Martyn Bolt who has put forward a suggestion that Harry be nominated to be 1 of the 8,000.00 torch bearers to carry the Olympic torch next year in time fot the start of the 2012 Olympic Games. This would be an absolute honour for Harry and us if if was succesful in his nomination. Thank you to the Mirfield Reporter for the lovely story they have printed and lets hope all of Mirfield get behind their Ambassador, Harry and nominate him to carry the Olympic flame.