Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Wednesday, 1 June 2011
Physiotherapy
Harry has seen a new physiotherapist today and he's still very stiff in some of his joints, especially his legs and the right side of his body is weaker. He's been given some strengthening exercises to do and is booked in again for some more hydrotherapy. Need to invest in a gym ball so Harry can learn to balance on it, therefore strengthening his core muscles and making his right side stronger. Harry is also having another hand splint made for his left hand and he will wear his splints for 1 to 2 hours per day to support the position of his hands.
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