Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Friday, 18 May 2012
Public Speaking!
Harry was invited to the Early Years unit at Overthorpe J&I School today to talk to the children about being chosen to carry the Olympic torch. I was so very proud of Harry. He spoke clearly and confidentley and most importantly age appropriatley to the children who ranged from 3-5 years old.
We've offered to visit the children again with the torch for them to be able to see the real thing and not just pictures. Thank you to all the children & staff at Overthorpe who made Harry feel so welcome.
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What an amazing young man our Harry is turning out to be. He will be an inspiration to everyone he meets both now and in the future. Keep up the good work our Hazza. Unc M xxxx
ReplyDeleteThank you Unc M xxxx
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