Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Sunday, 19 August 2012

Mirfield Show 2012 & The Queen

Thank you to The Mirfield Show, who invited Harry along to share his Olympic Torch. Harry had the pleasure of meeting a brilliant Queen look-a-like and he got to travel in style with her to the opening of the show. Thank you to everyone who came up and said hi to Harry and we hoped you enjoyed seeing the Olympic torch.