Harry & friends
Harry, Hayley & Jesper
Hayley, Harry & Michiel
Lucy & Harry
Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Sunday, 20 January 2013
Monday, 7 January 2013
Progeria Reunion Fundraiser
Please see the link to John, Julia & Lloyds JustGiving page
You can now text your donations too. Text DIRT55 £the amount you want to donate to 70070
Thank you so much xxx
Please sponsor Harry's Dad, Aunty Julia & Cousin Lloyd in completing the Worlds Largest Obstacle Course and help them raise money for this years Progeria Reunion.
You can now text your donations too. Text DIRT55 £the amount you want to donate to 70070
Thank you so much xxx
Please sponsor Harry's Dad, Aunty Julia & Cousin Lloyd in completing the Worlds Largest Obstacle Course and help them raise money for this years Progeria Reunion.
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