Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Monday, 7 January 2013

Progeria Reunion Fundraiser

Please see the link to John, Julia & Lloyds JustGiving page

You can now text your donations too. Text DIRT55 £the amount you want to donate to 70070
Thank you so much xxx

Please sponsor Harry's Dad, Aunty Julia & Cousin Lloyd in completing the Worlds Largest Obstacle Course and help them raise money for this years Progeria Reunion.