Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Friday, 15 August 2014

Progeria Reunion - Denmark 2014

On Thursday 5th August, Harry & I along with his big brother, Jack travelled to Denmark, to take part in this years Progeria Reunion. The reunion has always been the wish of Jesper from Denmark and this was finally made possible. An amazing time was had by all.