Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Saturday, 28 February 2015

Update

We can not believe that in just a few months Harry will sit his final exams in school, ready for the next phase sixth form/college. Where has the time gone. It has literally flown by.

In April Harry will be attending his school prom. We already have 'the suit' and Harry has a date... Photo from Harry's Prom :)

Harry is very much looking forward to the next Progeria Reunion this August being hosted by Bjorn and his family. We are already busy putting on our fundraising hats in order that the families in the UK living with Progeria can travel to the reunion.