Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA).
Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Friday, 1 February 2019
No longer a ‘Teen’
Happy 20th Birthday Harry. 🎁No longer a ‘Teen’ now in your ‘Twenty’s’ have a great day celebrating this milestone. 🎉So proud of you. Lotsalove always Mum & Dad xxx 🎈 🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈
Greetings Harry from Philadelphia, Pennsylvania, USA! I've been following your story for years now and it's totally awesome that you're 20 (and almost a half) now. I'm so happy for you and your family that you're doing so well! You're one cool dude and I hope you continue to kick butt for many years to come. And by the way, I love your tattoos! All the best, Carolyn Corr
I am very much happy to share to every viewers that is reading this,I want to inform the whole public of how I got help for my herpes, I wanted this since 6 months ago, I have also taken treatment from some doctor,few weeks back I came on the net to see if I will be able to get any information as to cure my herpes, on my search I saw various testimony of people who was helped by a great man called Dr Akhigbe and without any hesitation, I contacted him, I wrote to him and and he guided me, I asked him for solutions and he started the remedies for me and indeed 3 weeks after I started using the medicine, I was completely happy as it worked for me.I went to the hospital for check up and indeed I was declared negative from my disease, and I also waited again for two weeks and went back to another hospital for check up to be fully sure and to my great surprise I was still declared negative, and I decided to share this great opportunity to those people out there fighting this sickness, You can contact him now for your medicine to cure your diseases, contact his Email; drrealakhigbe@gmail.com or Whatsapp +2348142454860. website. hpps:drrealakhigbe.weebly.com Dr Akhigbe also cure diseases like.. HIV Herpes CancerChronic DiseaseAsthmaParkinson's diseaseExternal infection Als, PROGERIAcommon coldmultiple sclerosis diseaseNausea, Vomiting or DiarrheaHeart Disease DiabetesKidney DiseaseLupusEpilepsyStrokeEczemaEating DisorderBack Pain. etc contact him for your solution.
Harry, You are to me a very courageous man. Thank you so much for sharing your story on mystery diagnosis and here on your blog. I love your pics. Keep positive. You are doing a great job!. I send you love from Barcelona, Spain. xxx. Blanca
By the way, Harry, I have been reading that vitamin D may help delay ageing in progeria-related syndromes. Have you ever heard about it? I am originally a Dr. in Pharmacy. May be you could ask your doctor about the possibility of taking a vitamin D supplement, together with magnesium (it seems that vitamin D works better when taken together with magnesium). I attach here a link about this topic, on scientific articles written about this. Big hug! Blanca https://pubmed.ncbi.nlm.nih.gov/?term=vitamin+D+progeria
nice story.... this story inspire the other also
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Hola, saludos de una argentina y un brasileño
ReplyDeleteGreetings Harry from Philadelphia, Pennsylvania, USA! I've been following your story for years now and it's totally awesome that you're 20 (and almost a half) now. I'm so happy for you and your family that you're doing so well! You're one cool dude and I hope you continue to kick butt for many years to come. And by the way, I love your tattoos! All the best, Carolyn Corr
ReplyDeleteI am very much happy to share to every viewers that is reading this,I want to inform the whole public of how I got help for my herpes, I wanted this since 6 months ago, I have also taken treatment from some doctor,few weeks back I came on the net to see if I will be able to get any information as to cure my herpes, on my search I saw various testimony of people who was helped by a great man called Dr Akhigbe and without any hesitation, I contacted him, I wrote to him and and he guided me, I asked him for solutions and he started the remedies for me and indeed 3 weeks after I started using the medicine, I was completely happy as it worked for me.I went to the hospital for check up and indeed I was declared negative from my disease, and I also waited again for two weeks and went back to another hospital for check up to be fully sure and to my great surprise I was still declared negative, and I decided to share this great opportunity to those people out there fighting this sickness, You can contact him now for your medicine to cure your diseases, contact his Email; drrealakhigbe@gmail.com or Whatsapp +2348142454860. website. hpps:drrealakhigbe.weebly.com
ReplyDeleteDr Akhigbe also cure diseases like..
HIV
Herpes
CancerChronic DiseaseAsthmaParkinson's diseaseExternal infection
Als, PROGERIAcommon coldmultiple sclerosis diseaseNausea, Vomiting or DiarrheaHeart Disease
DiabetesKidney DiseaseLupusEpilepsyStrokeEczemaEating DisorderBack Pain. etc
contact him for your solution.
Simply inspiring. Thank you for sharing with us.
ReplyDeleteThank you for sharing.
ReplyDeleteHarry,
ReplyDeleteYou are to me a very courageous man. Thank you so much for sharing your story on mystery diagnosis and here on your blog. I love your pics. Keep positive. You are doing a great job!. I send you love from Barcelona, Spain. xxx. Blanca
By the way, Harry, I have been reading that vitamin D may help delay ageing in progeria-related syndromes. Have you ever heard about it? I am originally a Dr. in Pharmacy. May be you could ask your doctor about the possibility of taking a vitamin D supplement, together with magnesium (it seems that vitamin D works better when taken together with magnesium). I attach here a link about this topic, on scientific articles written about this. Big hug! Blanca
ReplyDeletehttps://pubmed.ncbi.nlm.nih.gov/?term=vitamin+D+progeria