Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Monday, 30 December 2019

Fly High Mats 💙👼🏻

On Friday 27th December, Harry, Michiel, Amber & Miles along with family members said their final goodbyes and also celebrated the many adventures and life of their friend Mats in Belgium. Afterwards we enjoyed Mats’s Favourite wines and enjoyed 8 of his favourite foods whilst sharing our favourite memories. Sleep well Mats and fly high. 09.09.2002 - 18.12.2019. 💙👼🏻