Harry & I are to be VIP guests of Simon Cowell on The X Factor Result show on Sunday 14th October, courtesy of Harry's favorite football team Huddersfield Town. Photos and write up to follow.
Huge thank you once again to the amazing people at HTAFC for giving Harry such a treat.
Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Thursday, 11 October 2012
Tuesday, 25 September 2012
The difference!
A diagram to help explain the differences between Classical Progeria and Non Classical. Harry has Non Classical Progeria.
Sunday, 23 September 2012
Progeria Reunion, Italy 2012
Harry and I have just had an amazing few days in beautiful Italy for this years Progeria Reunion. for Harry to be around children like him is so inspiring.
The love these kids have for each other is something only they understand. We never say goodbye only see you soon. We are counting down the days till we can all be together again.
The love these kids have for each other is something only they understand. We never say goodbye only see you soon. We are counting down the days till we can all be together again.
Saturday, 25 August 2012
London 2012 Olympic Gold Medal
Harry was invited to Huddersfield Town's Golden Game against Burnley today and he joined his fellow torch bearers from our area to line the pitch and welcome on the players. Harry also met Ed Clancy who won a Gold & Bronze Medal in Cycling.
Town won 2-0 :) Thank you again HTAFC for a great day.
Town won 2-0 :) Thank you again HTAFC for a great day.
Sunday, 19 August 2012
Mirfield Show 2012 & The Queen
Thank you to The Mirfield Show, who invited Harry along to share his Olympic Torch. Harry had the pleasure of meeting a brilliant Queen look-a-like and he got to travel in style with her to the opening of the show. Thank you to everyone who came up and said hi to Harry and we hoped you enjoyed seeing the Olympic torch.
Sunday, 22 July 2012
Thank you so much...
Harry & I would very much like to thank the children of Pudsey Lowtown Primary School who have raised a fantastic £150.00 for the Harry & Friends charity.
Harry had his photo taken with every pupil in the school and in turn the school have printed these out and asked for donations. We are thrilled that you took the time to do this for Harry & Friends and to send him photographs of your Olympic display and the winning Olympic torches and the Q&A's via interviews with Harry that you completed.
The interviews were written by the following children.
Emma & Charlotte
Ethan & John
Jake & Joseph
Lewis & Bailey
Maisie & Marija
Harry enjoyed reading them all and a BIG thank you from him too.
Well done everyone, it was lovely to meet you all and visit your school.
Harry had his photo taken with every pupil in the school and in turn the school have printed these out and asked for donations. We are thrilled that you took the time to do this for Harry & Friends and to send him photographs of your Olympic display and the winning Olympic torches and the Q&A's via interviews with Harry that you completed.
The interviews were written by the following children.
Emma & Charlotte
Ethan & John
Jake & Joseph
Lewis & Bailey
Maisie & Marija
Harry enjoyed reading them all and a BIG thank you from him too.
Well done everyone, it was lovely to meet you all and visit your school.
Monday, 16 July 2012
Dear Harry...
Harry has received some lovely cards and letters from people, thanking him for sharing his Olympic Torch. We keep them all in his scrap book, though I think soon he will need a scrap box!
Thank you to everyone who has taken the time to write to Harry.
Thank you to everyone who has taken the time to write to Harry.
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