Harry
Monday, 3 October 2011
Friday, 30 September 2011
Hernia!!!!
I took Harry to the doctors yesterday as he's had a small pea sized lump above his belly button, which over the last 2 weeks has grown larger & is painful to touch.
As I suspected Harry has a hernia.
So the doctor has referred Harry to be seen by a surgeon.
As I suspected Harry has a hernia.
So the doctor has referred Harry to be seen by a surgeon.
Wednesday, 28 September 2011
Catch up!!!
Harry has enjoyed his 3rd week back at High school, now in year 8!!!!
He's very much looking forward to the Progeria Reunion in a couple of weeks, to catch up with his friends from all over Europe whom he met last year.
Noticed him limping today, said his legs were paifull. Horrid arthritis, wish I could take it away from him....
On a brighter note...We've some exciting news and we will reveal all soon. So watch this space.
He's very much looking forward to the Progeria Reunion in a couple of weeks, to catch up with his friends from all over Europe whom he met last year.
Noticed him limping today, said his legs were paifull. Horrid arthritis, wish I could take it away from him....
On a brighter note...We've some exciting news and we will reveal all soon. So watch this space.
Saturday, 6 August 2011
A weekend of Fun
Harry & I flew to Gatwick on Friday 29th July & met with our dear friend Angela, who lost her beautiful daughter Claire to Progeria. We then hopped on a train to Bexhill on Sea where we were met by Hayley, Kerry & Mark. We then went for a beautiful lunch and a play on the beach. Friday evening Harry & I attended a Zumba Festival with Hayley, Mark & Charlotte to raise money for the UK Progeria Reunion. Harry certainley enjoyed the dancing.
Saturday 30th July. Harry & Hayley had some photos taken by the media with a view to running a story on their friendship. We watched the Bexhill carnival and Mark took Harry & Hayley to a fun fair, where more phots were taken. We shopped a bit and chilled a bit then in the evening we attended a Clairvoyant evening with Hayley, Kerry, Janie & Angela, again to raise money for the reunion.
Up at 6.15 am Sunday 31st July a sunny morning to head to the aerodrome where some very brave but equally crazy people did a skydive all to raise money for the reunion.
Monday 1st August we had a day of rest and relaxation, and Harry & Hayley playing in the Wii together, then to the train station to say goodbye. Flew from Gatwick to Manchester. What a lovely weekend Harry & I shared with very special people.
Monday, 25 July 2011
Scout Camp
Harry has been on Scout camp since Friday evening & Ive just received a post on my FB which I thought Id share, which sums up the fun Harry must be having.
"Well.. Harry slept under the stars in a Bivvy, which they made themselves out of trees, sticks and leaves, enjoyed a full cooked breakfast made by themselves, enjoyed loads of wide games, chopped wood the keep the fire burning, went on the water slide, had a lovely chicken casserole for tea and spent the evening doing lots of boy things. I wonder which of you had the most fun ?. As you might be able to tell, Harry and the scouts are having a great time. I think they will all come home happy but very tired, afterall it is soooooo tiring having fun!!"
Thank you to Jo (also a Scout Mummy) for sharing this with me.
Missing Harry so much but know he is having amazing time. He is home on Tuesday and then on Friday we fly to visit Hayley Okines and her family for a long weekend, which we are both so excited about..... More to follow
"Well.. Harry slept under the stars in a Bivvy, which they made themselves out of trees, sticks and leaves, enjoyed a full cooked breakfast made by themselves, enjoyed loads of wide games, chopped wood the keep the fire burning, went on the water slide, had a lovely chicken casserole for tea and spent the evening doing lots of boy things. I wonder which of you had the most fun ?. As you might be able to tell, Harry and the scouts are having a great time. I think they will all come home happy but very tired, afterall it is soooooo tiring having fun!!"
Thank you to Jo (also a Scout Mummy) for sharing this with me.
Missing Harry so much but know he is having amazing time. He is home on Tuesday and then on Friday we fly to visit Hayley Okines and her family for a long weekend, which we are both so excited about..... More to follow
Wednesday, 1 June 2011
Physiotherapy
Harry has seen a new physiotherapist today and he's still very stiff in some of his joints, especially his legs and the right side of his body is weaker. He's been given some strengthening exercises to do and is booked in again for some more hydrotherapy. Need to invest in a gym ball so Harry can learn to balance on it, therefore strengthening his core muscles and making his right side stronger. Harry is also having another hand splint made for his left hand and he will wear his splints for 1 to 2 hours per day to support the position of his hands.
Saturday, 21 May 2011
UK PROGERIA REUNION 2011
We are currently helping our great friends the Okines family, fundraise for the UK Progeria Reunion 2011 to take place in October in Kent. We are busy organising sponsored toddles, raffles, leg waxes and auctions here in Mirfield, West Yorkshire. We are looking for generous people and companies to kindly donate gifts, prize and vouchers to support the fund raising efforts. If you can help please contact me via this blog or on my work telephone number, Wellhouse Pre-School 01924 493216
Thank you so very much in advance
Sharron, John, Emma, Jack & Harry xx
Thank you so very much in advance
Sharron, John, Emma, Jack & Harry xx
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