Harry and a group of 8 children all Huddersfield Town Fans had a visit to a sweet factory today.
They tasted some traditional sweets and watched as the sweets were made in the factory. They were then treated to lots of different sweets to take home and share with family and friends.
We were accompanied by Town legend Ambassador Andy Booth, who did a great football quiz on the coach on the way home & James (who took home 2 big boxes of sweets, he he)
We then went for lunch and then time to go home. Thank you so much to everyone at Stockley's Sweets who made the day so enjoyable & fun
Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Tuesday, 30 October 2012
Monday, 15 October 2012
The X Factor - Thank you HTAFC
One word WOW! What a great night Harry had at the X Factor result show, meeting the stars and experiencing a live show and the secrets you don't see on the Television :)
Harry met judge Louis Walsh who called Harry 'Sir' and some of the X Factor contestants who all were so nice and took the time to pose for a photograph with Harry. We had the best 2 seats with Simon Cowells' name on and Harry's written underneath, such a privilege to be a VIP Guest.
Harry met judge Louis Walsh who called Harry 'Sir' and some of the X Factor contestants who all were so nice and took the time to pose for a photograph with Harry. We had the best 2 seats with Simon Cowells' name on and Harry's written underneath, such a privilege to be a VIP Guest.
Thursday, 11 October 2012
The X Factor
Harry & I are to be VIP guests of Simon Cowell on The X Factor Result show on Sunday 14th October, courtesy of Harry's favorite football team Huddersfield Town. Photos and write up to follow.
Huge thank you once again to the amazing people at HTAFC for giving Harry such a treat.
Huge thank you once again to the amazing people at HTAFC for giving Harry such a treat.
Tuesday, 25 September 2012
The difference!
A diagram to help explain the differences between Classical Progeria and Non Classical. Harry has Non Classical Progeria.
Sunday, 23 September 2012
Progeria Reunion, Italy 2012
Harry and I have just had an amazing few days in beautiful Italy for this years Progeria Reunion. for Harry to be around children like him is so inspiring.
The love these kids have for each other is something only they understand. We never say goodbye only see you soon. We are counting down the days till we can all be together again.
The love these kids have for each other is something only they understand. We never say goodbye only see you soon. We are counting down the days till we can all be together again.
Saturday, 25 August 2012
London 2012 Olympic Gold Medal
Harry was invited to Huddersfield Town's Golden Game against Burnley today and he joined his fellow torch bearers from our area to line the pitch and welcome on the players. Harry also met Ed Clancy who won a Gold & Bronze Medal in Cycling.
Town won 2-0 :) Thank you again HTAFC for a great day.
Town won 2-0 :) Thank you again HTAFC for a great day.
Sunday, 19 August 2012
Mirfield Show 2012 & The Queen
Thank you to The Mirfield Show, who invited Harry along to share his Olympic Torch. Harry had the pleasure of meeting a brilliant Queen look-a-like and he got to travel in style with her to the opening of the show. Thank you to everyone who came up and said hi to Harry and we hoped you enjoyed seeing the Olympic torch.
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