Happy Birthday Harry!

Today Harry has reached another milestone and celebrated his 17th birthday.
Happy Birthday little man xxx

Thank you

A Huge thank you to Martine & the team at Borg Warner turbosystems, Bradford, who have raised £1750.00 for Progeria UK. Thank you also to Sue Ibberson for nominating Harry

Harry & Zeus

On the 4th July, we welcomed Zeus, a border terrier puppy for Harry. Zeus has settled well and is an honorary member of Team Crowther.

They have a great friendship as you can see from the photo. They love to snooze together :)

Sleep well Hayley

On Thursday 2nd April at 9.39pm with her Mum & Dad holding her, our beautiful friend Hayley fell asleep. She was 17 years & 4 months old.
She fought so bravely but lost her battle to pneumonia. We will miss you so very much Hayley and you will always be in our hearts

This photo is the first photo H&H had taken together in London, May 2010

This is one of the last photos taken in Denmark, August 2014

The very last photo ever taken of H&H was in Turkey, September 2014 and this photo sums up their friendship perfectly.


Memories to last a lifetime

xxx

Update

We can not believe that in just a few months Harry will sit his final exams in school, ready for the next phase sixth form/college. Where has the time gone. It has literally flown by.

In April Harry will be attending his school prom. We already have 'the suit' and Harry has a date... Photo from Harry's Prom :)

Harry is very much looking forward to the next Progeria Reunion this August being hosted by Bjorn and his family. We are already busy putting on our fundraising hats in order that the families in the UK living with Progeria can travel to the reunion.

For now, thank you everyone for following this blog and we will be back soon. xx

"It's not goodbye, it's see you again soon"

Harry giving Claudia a kiss and a cuddle the night before she flew home to Portugal.
These cuddles and kisses are so important to the children. It's not goodbye it's see you again soon...

International Progeria Reunion - Istanbul, Turkey September 2014

Harry has been lucky enough to attend another reunion this year as guests of Gamze and the President of Turkey.

I was unable to travel with Harry due to commitments in University, so on Sunday 21st September Harry travelled to Turkey with his Grandad. However on the evening of Wednesday 24th I surprised them both by arriving and spending the rest of the week with them.

We had a great time and thank you to all involved.