Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Tuesday, 2 February 2010

Happy 11th Birthday Harry

Its Harry's 11th birthday today and we've just done his cake and candles. I cant believe my little man is 11 and will be starting high school in Sept. He's too little and the blazer for his uniform will swamp him. Will have to have one specially made I think.