Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Wednesday, 17 February 2010

Insoles round 2!!!!

Harry has got his new insoles, they are alot softer than his others. He did get up during the night with achey legs and wanted a paracetamol so he's still breaking them in.... half an hour for the first time, an hour the next and so on...... See how he copes with them tomorrow when we go out for a walk around town in them..