Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Wednesday, 31 March 2010
Hospital Visit
Harry has an appointment on the 13th April at the Hospital with a specialist in Rheumatoid Arthritus to see if this is the cause of Harry's pains in some of his joints. His left leg at the knee is especially bothering him & he is asking for more painkillers through out the day especially during school and in an evening before his bed time. I hope that we will get some answers to Harry's joint pain and that something can be done to ease his discomfort. I dont like that he has to take pracetamol & ibuprofen all the time.....
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment