Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Monday, 1 March 2010
Aches & Pains
Harry has his 6 monthly appointment with his pediatrician 4th March. His physiotherapist has hopefully written to him for a referal to a specialist in chronic pain/ arthritus etc. Harry is starting to complain more and more of pain in his legs, mostly his left leg and now his left knee, both wrists. I dont like to keep giving him paracetamol and ibuprofen. There must be something else they can do. Its not fair he suffers with joint pain at only 11 years old. He never normally complains but as soon as I picked him up from school today he said his knee was hurting.. I wish I could take the pain away.
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I can feel for Harry...I get the odd pain in my knees etc...but at almost 69 years old I expect it...I find cod liver oil helps my joints.xx
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