Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Tuesday, 22 November 2011
Moscow, Russia
Back in October, Harry, myself, Hayley & Kerry took a trip to Moscow, Russia to appear in a programme about Progeria. We met a 16 year old girl and a 20 year old young man with yet another believed form of Progeria which differed very much to Harry & Hayley's form. It was a interesting vist and it was great to visit Russia for the first time even if it was freezing!!!!
You can watch the programme in full at the attached link
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