Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Friday, 9 December 2011
London 2012
Yesterday 8th December was a very exciting time in our home, Harry has been succesful in the nomination process to be a torch bearer in the Olympic Games in London 2012. Harry received his conditional offer and we are so very proud of him. Harry will get his moment to shine on Monday 25th June 2012
What an amazing feeling knowing that our son will be part of British history and represent his town, community, and most importantly family & friends.
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