Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Sunday, 25 March 2012
Fun & Physiotherapy
Today, at last is a lovely, warm spring day and Harry's enjoyed some fun and physio in his hot tub. This is the best type of excercise for children with a Progeria as the water is warm and gentle on their joints.
Harry spends more time under the water, doing somersaults and headstands, something which is impossible for him to do out of water on dry land. I love watching him have fun in the water & for a short while I can forget that his joints are stiff and cause him to ache. He should have been a dolphin :)
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