Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Saturday, 24 March 2012

Harry's dad in training for Run!!!

Harry's dad John is training really hard so that he can set off on the challenge with Charlotte and Becky when they commence their mammoth run on Thursday 5th April. John is very much hoping to at least run with them for 10-20 miles

Over a £1000 has been raised so far for the Progeria Family Circle. Thank you to those who have so very kindly donated. If you would like to donate please follow the link www.progeriafamilycircle.co.uk to the right of this post. Thank you

Good luck John, Charlotte & Becky xxxx