Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Saturday, 7 April 2012
Harry & The Olympic Torch
Meet the outstanding 66 year old Pat who is the oldest known Olympic torch bearer in Kirklees, having her photo taken with Harry who at 13 is the youngest in Kirklees. Pat is such an inspirational lady, who runs marathons for charity. We would like to wish her all the best for when she runs the London Marathon on the 22nd April 2012.
Subscribe to:
Post Comments (Atom)
No comments:
Post a Comment