Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Sunday, 15 April 2012
They did it!!
Congratulations and lots of love to Charlotte & Becky from Harry & Hayley as the girls crossed the finishing line after running 272 miles from Harry's home in Mirfield on the 5th April 2012, Yorkshire to Cranbrook, Kent 14th April 2012 the home of Hayley's sister Charlotte.
Over £5,000.00 has been raised for the Progeria Family Circle UK
Harry's dad John joined the girls for the final 6 miles too. So proud of him for running 36 miles in total. Love you John/Daddy xx
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