Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Monday, 19 November 2012

Children of Courage match at Huddersfield Town

Harry joined 9 children of courage at Huddersfield Towns game against Brighton. We all had a great day, despite Brighton winning 2-1
Meeting the other children and hearing their stories was very humbling.
As usual everyone at Town looked after us, thank you guys and Harry even got to meet his favourite player No.9 Lee Novak.