Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Tuesday, 25 June 2013

Kids Count Inspiration Awards 2013

On Monday 25th June Harry & I attended the Kids Count Inspiration Awards. Harry was awarded the MP's Special Award Inspire The House Highly Commended Certificate as the Most Inspirational Young Person. Harry was nominated by Simon Reevell MP

To share the evening with outstanding and inspirational young people was amazing. The event was very exciting with the awards being held in the House of Commons on the terrace.

We would very much like to thank Simon Reevell MP for nominating Harry and Linda Lawrence, Founder and Director of Kids Count UK for organizing such an inspiring event and bringing together inspiring young adults.