Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Saturday, 20 July 2013

Arqiva - The Emley Moor Community Award 2013

On Friday 19th July, in a small lift, we traveled up 275.3 meters in 8 minutes to the viewing gallery of Emley Moor Mast where Harry was presented with The Emley Moor Community Award 2013 in recognition of his determination and courage in raising awareness of his Atypical Progeria and in representing his community.

We would like to thank Simon Reevell MP for Dewsbury, John Cresswell CEO,Arqiva, Hannah Ridgeway, The Dewsbury Reporter, David Bentley, The Press and Neil Atkinson, The Huddersfield Daily Examiner for choosing Harry to be the worthy winner of this award and for his gift of a digital radio.

The view was amazing and it was great to share Harry's special moment with him. We would also like to thank a lady called Molly who very kindly gave Harry a gift via David at The Press.