Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Thursday, 16 January 2014

Remembering Sam Berns

Sam Berns who gained his angel wings on Friday 10th January 2014 was asked:- Is there any advice you would give to another child facing major life challenges?

His inspirational reply was:-

"I guess the main thing is…you want to overcome the challenge,….so you should probably try to do everything you can to overcome the challenge. But, always remember that being happy is the most important thing. So do everything that you can to make your life a happy one".