Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Sunday, 16 March 2014

Thank you Matthew

On behalf of Harry and our Progeria family we would like to say a BIG thank you to Harry's friend Matthew Greaves. Harry first met Matthew when he passed him the Olympic Flame in June 2012. Matthew said "Harry is a young man who's cheery disposition, willingness to help others and ability to overcome are truly inspirational".