On Friday 27th December, Harry, Michiel, Amber & Miles along with family members said their final goodbyes and also celebrated the many adventures and life of their friend Mats in Belgium. Afterwards we enjoyed Mats’s Favourite wines and enjoyed 8 of his favourite foods whilst sharing our favourite memories. Sleep well Mats and fly high. 09.09.2002 - 18.12.2019. ππΌπ»
Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Monday, 30 December 2019
Friday, 9 August 2019
BORN DIFFERENT
BORN DIFFERENT
Find out a little more about Harry in his own words in a small feature he did for the Born Different series.
Click on the BORN DIFFERENT link above to see his video on YouTube
Thank you xxx
Find out a little more about Harry in his own words in a small feature he did for the Born Different series.
Click on the BORN DIFFERENT link above to see his video on YouTube
Thank you xxx
Friday, 1 February 2019
No longer a ‘Teen’
Happy 20th Birthday Harry. πNo longer a ‘Teen’ now in your ‘Twenty’s’ have a great day celebrating this milestone. πSo proud of you. Lotsalove always Mum & Dad xxx π πππππππππππππππππππ
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