Those pesky tight Hamstrings!

Part of Harry's Progeria leaves him with extremely tight hamstrings, and when Harry is barefoot he, continually walks on this tip toes. After a recent hydrotherapy session his physio noted that his hamstrings on his right leg are really tight which causes Harry to have continual aches and pain in his legs on top of the arthritis.

So she has suggested that he should have an appointment to have a splint fitted, which he will wear for 30 minutes a day to strengthen his hamstrings and believe me Harry really does not like to do his physiotherapy exercises for his hamstrings. So at this present time we are awaiting an appointment to see the specialist. I'll up date later.

When Harry met Hayley - 10 Marathons in 10 days!!

Harry's friend Hayley has an amazing big sister, Charlotte who along with her friend Becky are running 10 marathons in 10 days to raise money for The Progeria Family Circle. The run will start from our home with Harry cheering them on and will finish 10 days later in Bexhill where Hayley will welcome home the tired but amazing Charlotte and Becky.

Go girls!!!!


I will post further details at a later date. So watch this space!

You can now view the website and make a donation at http://www.progeriafamilycircle.co.uk/ or see link attached. Thank you

Teenager!

Happy 13th Birthday Harry.

Congratulations Harry...

I have just listened to our answer machine and on Saturday 14th January Harry missed a call from Sir Patrick Stewart. Sir Patrick has left Harry an amazing message congratulating him on being chosen as an Olympic Torch Bearer.. Thank you Sir Patrick youve made Harry's day :))

2011

Harry has had yet another busy year, aside his different hospital appointments, he's also got up to some adventures. He spent a long weekend with Hayley in Bexhill on Sea which included Zumba, a psychic event and a parachute jump.. (Harry didnt jump, we just watched!!)

Hayley visited us here in Yorkshire, which was fun on the Canal boat, which was seen on Hayley's documentary on Channel 5's Extraodinary People.

Harry has raised money for both the Progeria Reunion and for Great Ormond Street Hospital of which he is a patient.

Harry & Hayley also travelled to Russia, what an adventure that was!! but a worthwhile visit all the same.

October was the Progeria Reunion and Harry met up with all his friends, including Christian, who sadly passed away from Progeria in December. Harry was so upset as this was his first experience in losing one of his friends who are so very special to him.

Harry helped turn on the Christmas lights in Huddersfield which was a great evening.

The big announcement of the year was that Harry will be representing Yorkshire by carrying the London 2012 Olympic flame on the 25th June 2012.......Watch this space..

Harry's next big milestone will be turning 13 in February 2012. I cant believe my little man will finally be a teenager...Wow

London 2012

Yesterday 8th December was a very exciting time in our home, Harry has been succesful in the nomination process to be a torch bearer in the Olympic Games in London 2012. Harry received his conditional offer and we are so very proud of him. Harry will get his moment to shine on Monday 25th June 2012



What an amazing feeling knowing that our son will be part of British history and represent his town, community, and most importantly family & friends.

OWN Network – Mystery Diagnosis – Too Young to Be Sick with Harry Crowther & Sadie Mills Jones – Achalasia – More Behind the Scenes

OWN Network – Mystery Diagnosis – Too Young to Be Sick with Harry Crowther & Sadie Mills Jones – Achalasia – More Behind the Scenes


A short clip of the film Harry made for Mystery Diagnosis back in October 2010