Ten in Ten

Thursday 5th April was the 1st Marathon in a long 10 days of 10 Marathons!!!

The guys did amazing

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Progeria Family Circle UK Marathon Day 1

Harry's Dad, John. Hayley's sister Charlotte and friends Becky & Tim set off from our house today on the first of 10 marathons in 10 days. I am so proud of my husband who ran an outstanding 29 miles today. The most he has run is 13!! A great big thank you to Charlotte, Becky & Tim for motivating John and keeping him going. Harry is so proud of his dad as I am proud of all of them for running their legs off in support of Harry and Hayley and children with Progeria

Fun & Physiotherapy

Today, at last is a lovely, warm spring day and Harry's enjoyed some fun and physio in his hot tub. This is the best type of excercise for children with a Progeria as the water is warm and gentle on their joints.

Harry spends more time under the water, doing somersaults and headstands, something which is impossible for him to do out of water on dry land. I love watching him have fun in the water & for a short while I can forget that his joints are stiff and cause him to ache. He should have been a dolphin :)

Harry's dad in training for Run!!!

Harry's dad John is training really hard so that he can set off on the challenge with Charlotte and Becky when they commence their mammoth run on Thursday 5th April. John is very much hoping to at least run with them for 10-20 miles

Over a £1000 has been raised so far for the Progeria Family Circle. Thank you to those who have so very kindly donated. If you would like to donate please follow the link www.progeriafamilycircle.co.uk to the right of this post. Thank you

Good luck John, Charlotte & Becky xxxx

Harry & The Olympic Torch

We are pleased to announce that Harry will be carrying the Olympic Torch on Monday 25th June in Wakefield. Go Harry!!!!!

ICE - In Case of Emergency - UTAG

Harry has worn a medical alert dog tag for a few years now, which informs people of his anesthetic alert and a difficult Intubation. However Harry now wears a dog tag with a USB stick attached which has his full medical details on. Progeria is so extremely rare that not many Doctors and medical professionals will see a case in their life time. So by putting all the details about Harry's form of Progeria on his dog tag gives them a better understanding and educates them in Progeria. Hopefully Harry will never have the need to share this information on his ICE dog tag and will keep safe from harm, but as the saying goes 'Better to be safe than sorry'.

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Thank you