Harry & friends
Harry, Hayley & Jesper
Hayley, Harry & Michiel
Lucy & Harry
Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Sunday, 20 January 2013
Monday, 7 January 2013
Progeria Reunion Fundraiser
Please see the link to John, Julia & Lloyds JustGiving page
You can now text your donations too. Text DIRT55 £the amount you want to donate to 70070
Thank you so much xxx
Please sponsor Harry's Dad, Aunty Julia & Cousin Lloyd in completing the Worlds Largest Obstacle Course and help them raise money for this years Progeria Reunion.
You can now text your donations too. Text DIRT55 £the amount you want to donate to 70070
Thank you so much xxx
Please sponsor Harry's Dad, Aunty Julia & Cousin Lloyd in completing the Worlds Largest Obstacle Course and help them raise money for this years Progeria Reunion.
Monday, 19 November 2012
Children of Courage match at Huddersfield Town
Harry joined 9 children of courage at Huddersfield Towns game against Brighton. We all had a great day, despite Brighton winning 2-1
Meeting the other children and hearing their stories was very humbling.
As usual everyone at Town looked after us, thank you guys and Harry even got to meet his favourite player No.9 Lee Novak.
Meeting the other children and hearing their stories was very humbling.
As usual everyone at Town looked after us, thank you guys and Harry even got to meet his favourite player No.9 Lee Novak.
Sunday, 11 November 2012
Yorkshire Children of Courage & Achievement Awards 2012
Harry was nominated by Catherine Lacy, Manager at KIDS in Wakefield and won The Special Recognition Award for being the 'Pride of Yorkshire' at an evening of being very humbled and privileged to be in a room with such inspiring children who won awards for bravery, fundraising and carer of the year.
Sharing the evening with him was his Grandparents and his brother and sister. Brilliant job Harry xx
We'd like to thank Catherine for nominating Harry xx
Sharing the evening with him was his Grandparents and his brother and sister. Brilliant job Harry xx
We'd like to thank Catherine for nominating Harry xx
Tuesday, 30 October 2012
Stockley's Sweets
Harry and a group of 8 children all Huddersfield Town Fans had a visit to a sweet factory today.
They tasted some traditional sweets and watched as the sweets were made in the factory. They were then treated to lots of different sweets to take home and share with family and friends.
We were accompanied by Town legend Ambassador Andy Booth, who did a great football quiz on the coach on the way home & James (who took home 2 big boxes of sweets, he he)
We then went for lunch and then time to go home. Thank you so much to everyone at Stockley's Sweets who made the day so enjoyable & fun
They tasted some traditional sweets and watched as the sweets were made in the factory. They were then treated to lots of different sweets to take home and share with family and friends.
We were accompanied by Town legend Ambassador Andy Booth, who did a great football quiz on the coach on the way home & James (who took home 2 big boxes of sweets, he he)
We then went for lunch and then time to go home. Thank you so much to everyone at Stockley's Sweets who made the day so enjoyable & fun
Monday, 15 October 2012
The X Factor - Thank you HTAFC
One word WOW! What a great night Harry had at the X Factor result show, meeting the stars and experiencing a live show and the secrets you don't see on the Television :)
Harry met judge Louis Walsh who called Harry 'Sir' and some of the X Factor contestants who all were so nice and took the time to pose for a photograph with Harry. We had the best 2 seats with Simon Cowells' name on and Harry's written underneath, such a privilege to be a VIP Guest.
Harry met judge Louis Walsh who called Harry 'Sir' and some of the X Factor contestants who all were so nice and took the time to pose for a photograph with Harry. We had the best 2 seats with Simon Cowells' name on and Harry's written underneath, such a privilege to be a VIP Guest.
Thursday, 11 October 2012
The X Factor
Harry & I are to be VIP guests of Simon Cowell on The X Factor Result show on Sunday 14th October, courtesy of Harry's favorite football team Huddersfield Town. Photos and write up to follow.
Huge thank you once again to the amazing people at HTAFC for giving Harry such a treat.
Huge thank you once again to the amazing people at HTAFC for giving Harry such a treat.
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