Fly High Mats 💙👼🏻

On Friday 27th December, Harry, Michiel, Amber & Miles along with family members said their final goodbyes and also celebrated the many adventures and life of their friend Mats in Belgium.  Afterwards we enjoyed Mats’s Favourite wines and enjoyed 8 of his favourite foods whilst sharing our favourite memories. Sleep well  Mats and fly high. 09.09.2002 - 18.12.2019. 💙👼🏻

BORN DIFFERENT

BORN DIFFERENT

Find out a little more about Harry in his own words in a small feature he did for the Born Different series.

Click on the BORN DIFFERENT link above to see his video on YouTube

Thank you xxx

No longer a ‘Teen’

Happy 20th Birthday Harry. 🎁No longer a ‘Teen’ now in your ‘Twenty’s’ have a great day celebrating this milestone. 🎉So proud of you. Lotsalove always Mum & Dad xxx   🎈 🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈🎈

Happy 1st Birthday Isla and other news...

Harry's niece Isla is turning the BIG ONE today. Isla is Harry's only niece (so far!) and they adore each other.

Harry is very much looking forward to travelling to Portugal in October to attend this years Progeria reunion, hosted by Claudia (pictured with Harry below) and her family. This wiil be an action packed few days filled with lots of exciting trips, love and laughter. Watch this space for updates.


Sadly for our Progeria Family Circle, at the start on 2018 we said  goodbye to Lucy from Ireland, who fell asleep on January 1st.  Lucy was just eight years old.  In the photo below is Harry with Lucy and also Hayley who gained her Angel Wings on the 2nd April 2015.  We all miss them so much.

Progeria Family Circle Reunion in Oslo, Norway 2017

From the 24th - 29th of August Harry & myself attended this years Progeria Reunion in Oslo, hosted by Miss Skoom. We had an amazing 5 days of fun and laughter and there are so many people to thank, from Miss Skoom, Marjet, all the dream team. Huge thank you also to the trampoline park, circus Arnardo, the amusement park, go karting, zip lining and Frambu. Many thanks also to Hotel 33. There was of course also time for reflection and remembering those who we lost in 2016/2017 since our last reunion. Micael, Gamze & Mia, who we all remember with love and affection.

from L>R Harry, Michiel, Mats from Belgium and Miles from Sweden.

Harry with Amber, sister of Michiel.

Harry with Claudia from Portugal

Amber, Harry & Bjorn from the Netherlands

Harry with Luke and his dad Ronny from Germany, who for them, this was their first reunion.

Harry with Michiel and Jesper from Denmark. Jesper and the community of Denmark helped fund this years reunion and for that we offer you much love & appreciation.

Goodnight sweet Gamze

On the 27th June 2017 aged just 17 years and 4 months our dear friend Gamze fell asleep and grew her angels wings. Gamze had the most beautiful blue eyes and a smile so bright it would light up a room. It has been our pleasure to be your friend sweet Gamze. Sleep well xxx

Family is everything. Progeria Reunion Promo video

https://www.facebook.com/permalink.php?story_fbid=492606944404993&id=100009670753044

Please support if you can. Let's make this years reunion hosted by Miss Skoom in Oslo, Norway in August a reality.
Thank you xxx

Meet just some of the children who benefit from the reunions and magical, precious time spent together.