Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Friday, 15 January 2010
Cubs to Scouts
Harry has enjoyed his first couple of meetings at Scouts. He's still going to remain in cubs till March as he's appearing in the gang show dressed as a BROWNIE with Cubs. Scouts will be a lot tougher on him with more challenges, which I know he will rise too. I just hope he can keep up with the BIG BOYS and not be to disheartened when he cant. They are a great bunch of lads & the leaders are great too. Its nice to know his big brother Jack is there too, To keep an eye on him.
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