Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Sunday, 3 January 2010

Harry's story

I'm writing this blog to share Harry's story with others who may be experiencing the same or similar with their children. I will record Harry's day to day life, the highs and the lows and very importantly Harry's achievements. Harry has a facebook page which can be found at
http://www.facebook.com/group.php?v=wall&gid=18659383669