Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Monday, 4 January 2010

Harry & Homework!!!!!!

Harry is not a happy little chappy at the moment. He's doing his homework which is based on a BIG WRITE in preperation for his Year 6 SAT's tests in May. Harry does not enjoy writting as his hands and wrists ache. It is eased a little by a magic pencil called a STABILO 's move which gives him a better grip and support. Just read his work through and its a very good piece of writing using lots of his imagination. Here is an example of his written work called 'The Park'

'This vast 1 acre site has many entertaining facilities for all he family to enjoy'

Well done little man, keep up the good work. I am very proud of you x