Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Wednesday, 30 June 2010
Clever Chairpadbag
Just ordered Harry a chairpadbag for High school in September. Its a cool bag that holds all his books & stuff, then fastens over the back of a school chair and folds down into a back & seat cushion so that Harry will be comfortable whilst sat for his lessons. Looks brilliant. (Thanks to Harry's Aunty Julia for the link).
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