Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.
Harry
Saturday, 12 June 2010
Harry's Hot tub
Harry has hydrotherapy every Wed which helps promotes relaxation, relieves pain, assists movement and enables exercise. It can also help prevent his arthritis from getting worse. The hot tub will do the same so that Harry can exercise and relieve his aches and pains everyday. Harry has had the hot tub brought for him by a business so we are so very, very greatful x Have laid the patio and had the electrics done, waiting for a date for the hot tub to be installed.
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