Atypical Progeria Syndrome Harry's story

Hi, Im Harry Crowther, Im 24 years old and I have an extremely rare genetic disorder known as Atypical Progeria Syndrome (Non Classical Progeria) whereby I have a defect with the LAMIN A/C gene (LMNA). Though not to be confused with the classical Hutchinson Guilford Progeria Syndrome (HGPS) - both are Premature Aging Disorders. I was diagnosed in the USA aged 7 years old. Together with my Mum I keep this blog. Hope you enjoy my story.

Monday, 21 June 2010

Thank you!!!!

Thank you sooooooooooooo very, very much to everyone of my family, friends & facebook friends who has helped by donating money to the UK Progeria Reunion. Harry & I are very greatful and so much looking forward to spending time with Hayley & all the other children & their families whose lives are touched by Progeria.... Thankyou, thankyou, thankyou xxxx